Understanding Frontotemporal Dementia: Symptoms, Diagnosis, and Living with Loved Ones

2024-01-11 09:42:06

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    While Alzheimer’s manifests itself through memory loss, frontotemporal dementia changes personality. Five symptoms are characteristic.

    Among the 50 different forms of dementia, the so-called frontotemporal dementia (FTD) is considered a rather rare form, which is caused by nerve cell death in the forehead and temporal areas of the brain, the frontal lobe (frontal lobe) and the temporal lobe (temporal lobe). This form of dementia gained attention thanks to the well-known US actor Bruce Willis. The reason why the cells die is still largely unknown Alzheimer Research Initiative e. v. reported. In some cases, frontotemporal dementia, also known as “Pick’s disease” or “Pick’s disease,” is caused by changes in the genetic makeup. Men and women are equally commonly affected by frontotemporal dementia, according to German Center for Neurodegenerative Diseases e. V. (DZNE).

    An increased occurrence of the disease within a family is observed. Metabolic diseases should also be considered as a risk factor. Almost all sufferers show changes in personality and interpersonal behavior at an early stage, according to the German Alzheimer Society e. v.

    When dementia changes your personality: five typical early symptoms

    The first symptoms of frontotemporal dementia can become noticeable at an early age, under 30. Those affected stand out because they suddenly show cold, impulsive or even aggressive behavior. © Science Photo Library/Imago

    Why personality and behavior change in frontotemporal dementia may be explained by the fact that, among other things, emotions and social behavior are controlled from the affected frontal lobes and temporal lobes. The typical, noticeable early symptoms of frontotemporal dementia include:

    • Empathieverlust
    • Apathy and indifference
    • Disinhibition, also in sexual terms
    • Aggressive, irritable and inappropriate behavior
    • Tactlessness

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    Some patients also experience pronounced language disorders, especially word-finding difficulties. As with Alzheimer’s, memory is only affected as frontotemporal dementia progresses. Frontotemporal dementia usually begins much earlier than Alzheimer’s, on average between the ages of 50 and 60. The youngest affected people become ill under the age of 30, but some only over 60.

    Set personal goals and fulfill final wishes despite the symptoms of dementia

    Even if the dementia diagnosis may be difficult, those affected should still set personal goals, settle their affairs such as finances early on with the support of relatives or other professional help and, above all, fulfill their final wishes.

    Dementia: How the symptoms of frontotemporal dementia affect loved ones

    Whether Alzheimer’s dementia, vascular dementia, Parkinson’s dementia or frontotemporal dementia – the disease is in any case a great challenge and burden for the relatives. The person you once knew changes more and more over time. Living with someone who suffers from frontotemporal dementia is particularly difficult for relatives due to the disinhibited behavior, aggression and unpredictability of the symptoms. The lack of empathy and an increasing lack of interest in relatives and friends are often not easy to bear, as is the case German Alzheimer Society e. v. know from experience with those affected.

    When dementia changes personality: diagnosing frontotemporal dementia is challenging

    Diagnosing frontotemporal dementia can be difficult. Due to the pronounced behavioral problems and personality changes, other illnesses such as mania, schizophrenia, alcohol addiction or depression are often suspected.

    It is valuable if those affected have a doctor at their side who can carry out a very precise diagnosis, including the relatives, according to the exclusion principle. Important and crucial information can emerge through conversations with those close to you. Simple tests such as the mini-mental status test, the clock test and the DemTect test can show whether dementia is present. The Frontal Behavioral Inventory test was developed specifically for the diagnosis of frontotemporal dementia. There may be other people in your family who also suffer from FTD – in this case, a genetic test can simplify the diagnosis.

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    This article only contains general information on the respective health topic and is therefore not intended for self-diagnosis, treatment or medication. It in no way replaces a visit to the doctor. Our editorial team is not allowed to answer individual questions regarding medical conditions.

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