2023-06-16 04:11:33
4-year-old Tongtong was suffering from acute lymphoblastic leukemia. Tongtong’s mother was struck by a thunderbolt at the time, with thousands of question marks in her heart: “Why does my daughter get cancer?” This is also what every parent of a child with cancer Know your child’s first reaction to cancer. At that time, Tongtong’s mother was still digesting the news, not only because she had no clue regarding the next treatment, but also worried that Tongtong’s sister would also be psychologically affected. In the chaos, the young Tongtong was regarding to start preparing for the upcoming chemotherapy.
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Psychological construction before treatment
As a children’s medical counselor (hereinfollowing referred to as the counselor), it is from this stage to accompany the sick child and his family to meet the challenges. The first problem is that for the whole family, the pace of life has changed drastically. After learning that Tongtong was suffering from leukemia, her mother moved to a place closer to the hospital for the convenience of taking care of Tongtong. Tongtong’s older sister was taken care of by her mother-in-law, so the sisters seldom saw each other for a while. Later, due to the impact of the epidemic, my sister started to take classes online before she might be picked up to the new house. As a result, the two sisters spent more time with each other.
Tongtong has to adapt to the sudden change of living environment and social circle, the unfamiliar hospital environment, and also face various discomforts caused by drug side effects. Tongtong’s mother said frankly: “At that time, Tongtong lost a lot of hair due to chemotherapy, and she lost it in handfuls. I was afraid that Tongtong would be sad, so I cut her bald head with my own hands, but I was really depressed during the process.”
Companionship and support during treatment
Recalling that difficult time, Tongtong’s mother shared the story of Tongtong’s acquaintance with her counselors Ms. Linlin and Mancy, saying: “In the initial stage of treatment, we met Ms. Linlin in the hospital. Tong is very concerned, and Tong Tong will try her best to find any toys and labor supplies she wants to play with. During the epidemic, Miss Mancy also often cares regarding our needs, such as whether there are enough epidemic prevention items and so on. “
Tong Tong would also ask her mother: “Why is this girl, it seems that my father comes to me every day and asks me what toys I want to play with.” The counselor believes that siblings of sick children should not be ignored, and the mother sees the counselor’s caring: “Girls from the Children’s Cancer Foundation not only ask Tongtong if she has any gifts she wants on her birthday every year, but they will not forget her sister’s birthday, and also give her the gift she wants most.” Each gift contains With the care and warmth of the counselor.
In fact, Tongtong’s situation is not an isolated case. Take Tongtong’s leukemia as an example. When many parents learn that their children need to inject different drugs every day during the first stage (induction period), they will feel that they “haven’t warmed up, just To run away.” Our counselors encourage parents who have passed the first stage to share their experiences with other families in the ward, including various reactions and discomforts following chemotherapy, as well as coping methods. Strengthen the support between sick children and their families, so that they can feel the hard work of the “runners” around them, and face the road to rehabilitation with more confidence.
It’s like running a marathon
The treatment period for most children with cancer is as long as 3 years, but Tongtong completed it in only two and a half years. Although the daughter’s treatment period was shorter than usual, the mother’s worries were not different: “During that long period of treatment, I experienced a lot of ups and downs and anxiety. I was doing endless treatment with Tongtong, and it seemed like I would never see I didn’t know the end point, and I didn’t know what the result would be following the treatment. It wasn’t until the doctor said that the throat (central venous catheter) might be removed following the treatment was over, that the big stone hanging in my heart finally fell to the ground.”
“I will never forget my feelings that day…” said Tongtong’s mother. The two counselors organized a celebration ceremony for Tongtong that day. Doctors, girls, and aunts participated together, so we had the opportunity to personally thank so many medical staff for their support.” It was also because of this celebration that Tongtong also developed a way of gratitude of her own. She packed all kinds of her favorite The snacks became a bouquet of snack flowers and were given to everyone who helped her and her family on the healing journey.
Run a new mileage and bravely face the future
From the diagnosis of cancer to the intensive treatment period, and then to the completion of treatment, every child with cancer and his family have to go through a long anti-cancer marathon. The Children’s Medical Counseling Service’s “Running to a New Milestone” project celebrates this important life milestone with the recovered child (ie, Sunshine Boy) and his family in the role of a companion.
“Running a new mileage” also has a symbolic meaning, letting sick children know that a new life is regarding to start following the treatment is over. We first contacted parents and invited families to participate in day camp activities, and gave families a “player bag”, which contained gifts such as sports towels, board games, and life review notebooks. Little by little. At the end of the whole plan, there will be a small ceremony. Outside the outpatient clinic of the hospital, a banner will be used as the finish line, so that sick children can choose to cross the finish line in various forms or postures, symbolizing the successful completion of treatment. The medical team will hold different cheering cards as cheerleaders, and the attending doctor of the sick child will present a commemorative medal to recognize the hard work and dedication of the sick child and his family throughout the treatment process.
We hope that “Running a New Mileage” can help sick children grow up, and accompany them to start once more and run a new world. I believe this is also the wish of parents.
When the sick children finish their treatment, they will also face the challenge of returning to the community and adapting to the rhythm of school life. At this time, the girls from the foundation will also assist the sick children and their families to transition smoothly and adapt to the new life once more. Tongtong’s mother recalled that the girl from the foundation actively contacted the school following Tongtong removed her throat, arranged a meeting with the school teachers, and explained to the principal and teachers who were regarding to welcome Tongtong back to school the special features of Tongtong’s disease during the recovery period. needs, and dietary arrangements, so that the school can better understand the needs of sick children, and at the same time, it can better help Tongtong adapt to the campus environment as soon as possible, and make mothers feel at ease.
*Children’s medical counseling service is one of the main services of the Children’s Cancer Foundation. Children’s medical counselors understand children’s development, translate the medical process into a language that children can understand, and use different methods such as games, preview drills, relaxation exercises, and emotional expression , to enhance children’s ability to cope with diseases and treatment, and to make professional assessment and intervention through cooperation with families and medical teams.
Welcome to learn regarding children’s medical counseling services:https://childlife.ccf.org.hk/zh-hk
Source: Ms. Liang and Ms. Ye, children’s medical counselors of the Children’s Cancer Foundation
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