2023-06-13 03:06:20
Every 3 days in Taiwan, 1 more cases of ALS!Currently there is no antidote for ALS, families need more care
Every 90 minutes around the world, someone is diagnosed with ALS and dies from it. 90% of the cases have no family history, and the age of onset is usually between 40 and 70 years old. By 2040, the number of patients with ALS is expected to increase by 69% globally , In Taiwan, an average of 1 new ALS patient is added every 3 days. For every Frozen family, this is a silent drama of deprivation and loss. In despair, there is no script to follow.
There is currently no cure, only improvements in quality of care
ALS usually occurs in adults. As the disease progresses, in addition to weakness of the limbs, the ability to swallow, breathe, and speak will also be lost, but the feeling and consciousness will be completely normal. Currently, there is no antidote for ALS. The drugs approved by the US Food and Drug Administration can only slightly delay respiratory failure, and the drugs approved in recent years have no breakthrough in efficacy, and they are not available in Taiwan.
In 2016, an ALS study conducted by United Nations medical research experts showed that the number of patients with ALS in the world is expected to increase from 222,801 in 2015 to 376,674 in 2040, a global growth rate of 69%, and Taiwan will Increase by at least 50%. Therefore, strengthening ALS publicity, improving the quality of medical care for patients with ALS, promoting the application of technological assistive devices, and strengthening clinical and drug research are the focus of the work once morest ALS.
Understanding ALS can have a positive impact
Amyotrophic lateral sclerosis (ALS), commonly known as “ALS”, is the most common motor neuron disease. Every June 21st is “Global ALS Day”, which aims to raise public awareness of ALS. disease awareness. Since its establishment 26 years ago, the ALS Association has used storytelling methods to allow more people to understand that patients are struggling to explore and create life values in extreme difficulties, and continue to bring positive impacts to society.
Some of these stories have been transformed into artistic inspiration and nutrition, inspiring young artists to create innovative and breakthrough works; some stories have inspired doctors and scientists to continue to explore and devote themselves to the research of unraveling the mystery of motor neurone disease…
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