2023-10-04 09:30:04
Ilya Olivier, who lives alone at home, but sometimes wonders if he will be able to stay there. He needs assistance with all the actions of daily life. However, the association which operates at his home is no longer able to find enough professionals, nor to retain them. “The auxiliaries pass more and more quickly, less and less often. I feel like my life is not being respected. »
There are also Jeanne and Jean-François, the parents of Vincent, 37 years old, suffering from Duchenne muscular dystrophy, in a situation of great dependence, tracheotomized and ventilated twenty-four hours a day. They were forced to move in with their son to compensate for the frequent absences of professionals, who were also very insufficiently trained. Without a continued presence at his side, Vincent is in mortal danger. “We are at the end! »
Our associations, APF France Handicap and AFM-Téléthon, receive testimonies like these every day: living at home when you have a disability is increasingly difficult and dangerous. To carry out the actions essential to their lives (eating, washing, etc.), guarantee their safety and well-being, people and their families call on service providers or directly employ professionals. But, for months, the home help professions have been in crisis, and finding competent and stable staff is a challenge.
The causes of this crisis of unprecedented scale are well known: public underfinancing of human aid needs; low employee remuneration; denial of mental and physical load; working conditions deteriorated by the insufficiency of the aid plans granted by the departmental centers for disabled people; lack of social valuation of these professions; our country’s cultural lag in the place of people with disabilities and the role of those who support them.
In a home or nursing home
The consequences are catastrophic. In addition to putting their lives in danger, this shortage of home help deprives people with disabilities of the fundamental right to choose their lifestyle. This principle is established and recognized by the United Nations Convention on the Rights of Persons with Disabilities and the Citizenship of Persons with Disabilities Act 2005. At the beginning of 2023, the Council of Europe also condemned France for violating human rights, emphasizing the importance of aid services for “proper implementation of the right to autonomy, social integration and participation in community life”.
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