Living with Multiple Neurofibromatosis: A Rare Disease Causing Thousands of Tumors

2023-07-19 03:11:10

There are thousands of tumors in the woman’s body. (Picture/Flipping from Beijing Satellite TV, the same below)

Dandan, a 22-year-old woman from mainland China, has thousands of bubble-like tumors in her body. It turns out that she suffers from the rare disease “multiple neurofibromatosis”. As long as there are nerves, there are tumors, which makes her miserable. Like being bitten by ants.

According to “Beijing Satellite TV” report, Dandan’s body was troubled by thousands of tumors, as uncomfortable as an ant bite, and he might only kneel on the bed half paralyzed, unable to even move his neck. Dandan described that tumors are like weeds and a bottomless pit. The doctor said that Dandan even has tumors in his stomach, big and small. As the name implies, neurofibromas are where there are nerves, and they grow in clumps. When Dandan came to the doctor, he told him that he It hurts unbearably. Doctors said that if she has not been treated, her body will gradually deteriorate and she will eventually die in pain.

Doctors said the patient had tumors all over his body.

After this article was exposed, many people commented “Neurofibromatosis patient organization is here”, “Oh my God, can this be saved? It’s terrible”, “You must pay attention to the cafe au lait spots on your body, go to the hospital to screen for nerve fibers Tumors. This will also be inherited”, and Dandan himself also said in the message area, “Thank you for your attention, and hope that kind people will lend a helping hand to help me tide over the difficulties!”

It is understood that multiple neurofibromatosis is divided into type 1 and type 2. Type 2 belongs to the central nervous system type. 90% of patients suffering from type 1 will have coffee milk spots on the skin, which will increase with age , most people’s milk spots will only appear in the sun-exposed areas, while patients with neurofibroma will appear in the armpit or groin.

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