It was while reading the newspaper that his father discovered a testimony from a young woman “who described similar symptoms” to those of Anna, report our colleagues from Midi Libre.
As we can read on the website of the rare diseases portal, Nutcracker syndrome, or “nutcracker” is a rare renal syndrome related to compression of the left renal vein (VRG) between the superior mesenteric artery (SMA) and the abdominal aorta. This causes a reversal of blood flow.
As detailed Free lunch, this disease causes horrible suffering to those who have it, “pains throughout the abdomen and various symptoms such as blood in the urine, very painful periods, genital pain, digestive pain, pelvic varices and thrombosis of the left leg”.
3 to 4 million people with a rare disease
After “15 fucking years of medical wandering” and since then, many surgeries and medical examinations, Anna has finally come to the end of her “that damn nutcracker syndrome”. She wishes to emphasize the importance of “Trust yourself, and never give up”.
A rare disease is a disease that affects less than 5 people out of 10,000 in the population. 3 to 4 million people are affected in France and one in two patients is a child. 95% of rare diseases are “orphan”, that is to say that there is no treatment to treat those affected. Today, more than 7,000 different diseases are known.
