Health: “My disease is very rare and does not have a name”

  • Owen Clark
  • Health Correspondent for Wales – BBC News

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Debbie Schwartz is one of the first patients at the first national clinic for no-name syndromes in the UK

As a teenager, Debbie Schwartz was offended when doctors said all her illnesses were just fantasies in her head.

“It was soul-shattering and I felt hopeless, isolated and humiliated,” said Schwartz, a 47-year-old former teacher.

Fdebe suffers from a very rare disease, which specialists have not been able to identify – and this makes her one of the thousands of people searching for answers.

But she is now among the first patients at the first specialist clinic of its kind in the UK for patients with syndromes without a name.

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