2023-11-07 08:51:45
Suffering from Charcot’s disease, Thierry Joseph can hardly speak due to the evolution of his symptoms. But thanks to donations, the patient followed by the Tamarins clinic was able to acquire a tablet that he controls with his eyes to continue to communicate.
“Today is going well!“Sitting in front of his state-of-the-art tablet, Thierry Joseph takes a little time to find his words. It must be said that the patient suffering from Charcot’s disease must still become familiar with this new tool which allows him to express himself. . with his eyes!
“The tablet allows me to communicate more It still requires a little work and concentration.“, indicates this former sales and marketing director whose pathology was diagnosed in July 2021.
Watch the report from Réunion La 1ère:
Suffering from Charcot’s disease, Thierry Joseph can now express himself thanks to his smart tablet
For Thierry Joseph, it is about anticipating the evolution of the symptoms linked to his illness. And he is followed for this by the team of the rehabilitation center of the Tamarins clinic, in Le Port. Six health professionals follow him personally, from the speech therapist to the physiotherapist.
“I can still speak a little but the day I completely lose my voice, this tablet will allow me to continue to exchange and communicate“, he explains with difficulty, this time without his tablet.
Charcot disease, the other name given to amyotrophic lateral sclerosis (ALS), is in fact a degenerative disease. “It evolves completely differently depending on the patient.“, underlines Doctor Julia Schmit, practitioner of physical and rehabilitation medicine.
“There are patients who will initially have motor deficiencies and others for whom it will be more complicated initially for swallowing or speech.“, continues the doctor.
It is thanks to a chain of solidarity that Thierry Joseph was able to obtain two tablets, one for him and another for the Tamarins clinic. According to the person concerned, it was still necessary to pay 6,000 euros.
“This equipment is very expensive and there is no coverage by Social Security.confirms Dr Julia Schmit. Our role in the rehabilitation center is therefore also to help patients find financiers, via mutual insurance companies or the MDPH.“.
With his wife Sandrine, Thierry Joseph also works actively within ARSLA, the Association for Research on Amyotrophic Lateral Sclerosis.
The structure organizes donation collections, loans of equipment to patients and sporting events to inform the general public. It was also during a golf tournament at Bassin Bleu that Thierry and his partner were able to convince donors to purchase the tablet.
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