Emilie’s baby with an ultra-rare disease: “Deep down, I felt that our little Lucas was not well, I knew he was going to leave…”

It is an otherwise playful voice, in any case surprisingly dynamic and serene at the same time, which answers us on the telephone. That of Emilie, a young 28-year-old mother who, on Monday April 19, saw her “petit loulou Lucas”, then five weeks old. So in…

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