Emilie, 14 months old, has eight polar bear teddy bears – one for each time she has been operated on at OUH for her missing esophagus. You can’t tell from her that she was born with a rare diagnosis, and at home in Gørding she spends a lot of time playing with big brother Kian. Photo: Rikke Kjær Poulsen
Emilie suffers from such a rare diagnosis that she can suffocate without constant supervision, which is why 32-year-old Louise Bech has chosen to go on social assistance to be with her daughter. The job center has a different attitude. She has to work, even though, according to the family, the doctors estimate that the daughter is not ready to enter an institution. Esbjerg Municipality recognizes the problem.
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Dennis and Louise often have to call 112 when Emilie’s esophagus closes completely, and Louise has to provide first aid until the ambulance comes and takes them to OUH. Photo: Rikke Kjær Poulsen
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You can’t see Emilie that she has a severe diagnosis that can be life-threatening if she is not under supervision, and she plays a lot with big brother Kian at home in Gørding. Photo: Rikke Kjær Poulsen
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Scars on Emilie’s back bear witness to the things she has already gone through in her short life. Photo: Rikke Kjær Poulsen
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Louise is still not comfortable sending Emilie to daycare, and her biggest wish is to be able to stay with her until she is completely ready to leave. Photo: Rikke Kjær Poulsen
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Kian and Emilie are best friends in the house in Gørding, where they live with their mother and father and two other siblings. Photo: Rikke Kjær Poulsen
2024-02-14 11:35:52
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