2023-05-23 04:16:41
For 17 years, Frédéric’s daughter, suffering from Kidd’s syndrome, has been experiencing motor and psychosocial and emotional development problems. His academic performance has been significantly impacted. Recently, an osteopath specializing in this type of syndrome has already solved some of these problems thanks to a specific manipulation.
Somewhat relieved, Frédéric, father of 3 children, tells how a treatment was found so that his daughter might flourish more. “My daughter was first followed by a pediatrician from an early age. As the checks were carried out, we noticed that there were certain problems such as a lack of patience. We also noticed that at birth she had a flat skull at the back, but very slightly”he describes.
The inhabitant of Rebecq explains that for his child learning at the motor level is problematic. “As she grew up, we saw that there were more and more important problems. We also noticed that the asymmetry in the body and in the face was becoming more and more assertive. Always with this flat skull that there was a little bit at the back. We might see that it posed a big problem for her development when she grew up. As time went by, it was the language that had difficulty in It was also motor learning that was more complicated. Concentration became quite complicated when she grew up. It plays a lot on school learning and her movements are relatively slow.
Feeling helpless for many years, the former emergency paramedic says he did several searches on the Internet before coming across the site of an osteopath specializing in this Kidd syndrome. The latter seems to have solved the problem, putting an end to the anguish in this family. “We ended up finding out what it was because a general practitioner who didn’t know regarding the disease followed us anyway. After consultations, we were able to realize that all the symptoms she had corresponded perfectly to what she had. that we had read on the site of a specialist who deals with kiss and kidd syndromes. What really frustrated me was that we were not heard from other doctors sooner. We were told that the child was perfectly fine, that there was no problem. We were not seriously taken care of”, he believes.
What is Kidd Syndrome?
Symptoms of Kidd Syndrome (3-18 years) are due to Kiss syndrome that has not been treated in infants (We spoke to you regarding Kiss syndrome two years ago through Delphine’s testimony). Kidd is the abbreviation of: Kopfgelenk- induzierte Dysgnosie und Dysphorie which can be translated as “Dyspraxia/dysgnosia induced by the joints of the cranio-cervical junction”.
Doctor Gottfried Gutmann described Kiss syndrome in 1953, then Doctor Heiner Biedermann resumed and developed his research. “It’s a problem with the upper vertebrae of the neck, an asymmetry in the occiput C1-C2”, explained the osteopath Eddy Lippens. “This asymmetry is often caused by the position of the baby during pregnancy or childbirth.” If this syndrome is known in Germany, Austria or Switzerland, it is less so here or in France.
A syndrome not recognized by the medical profession? ONE (Birth and Childhood Office) says it has “heard of the difficulties encountered by some children with digestive disorders, crying, sleep disorders… and that all of these symptoms might be grouped under the name ‘Kiss syndrome’. Some think that this might be attributed to an asymmetry/blockage of the cranio-cervical junction and that this might be relieved by osteopathy. Unfortunately, there is currently no sufficiently solid scientific basis to validate the existence of this syndrome as such, nor any its causes or effects of osteopathy.”
ONE cannot therefore “to comment on such a syndrome, but is however well aware of the difficulties experienced by children and their parents when faced with this type of symptom. Other potential causes can lead to this type of manifestation and must be explored on a case-by-case basis. A support is also necessary to think regarding possible support. Parents who wish can come with their children to talk regarding it during a ONE consultation, where the different avenues will be discussed, in a benevolent and holistic setting.”
We see a phenomenal change
To find the most effective treatment possible, Frédéric went with his daughter to the practice of osteopath Eddy Lippens, in Paliseul (in the province of Luxembourg). The specialist had “worked miracles” in 2021 with Delphine’s child (find out more).
The man practices a technique learned almost 40 years ago during training in Germany. “Treatment is mainly manipulation of the upper cervical spine. Quite difficult manipulation, especially in infants. Pediatricians and midwives are aware of the existence of the syndrome”, he specifies.
Since their visits to Eddy Lippens, Frédéric has the impression of having a more fulfilled child: “I have seen results. It takes regarding 8 to 10 sessions. It all depends on the situation. We can clearly see that at the teaching level, she follows much better than before. She has a lot more concentration. At the neurological level , she is also affected. We see a phenomenal change in terms of her emotions, in terms of school learning, in academic terms. The asymmetry of the body has been corrected to a large extent.”
And to continue: “My daughter has great self-confidence. It’s night and day. She is making good progress. She manages to do work that she has never seen and that she manages to do by logic. What she can’t do before. She lost patience and gave up right away. Now she wants more and she has more character. She asserts herself more. She is more mature. Before she was 15, she mightn’t not have to do all that. She brings back good results and very positive notes in the report cards. If we were able to take a break from the sessions with the specialist, it is not excluded to go and have another check-up before the age 18 years old.”
The father of the family is now savoring this development that he has been waiting for for so long.
The 50-year-old man clarifies that his testimony is not intended to incriminate health professionals, but he hopes that it will eventually be able to help other parents in his case. He also wants to create an association so that this syndrome is more recognized in Belgium. He thus invites parents who are experiencing this situation to give him their testimonies.
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