Disabled Cahill ‘faces rejection after rejection’ but remains unpopular

Disabled Cahill ‘faces rejection after rejection’ but remains unpopular

2024-09-02 16:26:55

He accompanied his sister Inaya back to CP’s school. But he can’t stay in school. Eight-and-a-half-year-old Cahill did not “go back to school” on Monday. He’s not the only one. According to the National Union of Associations of Parents, People with Mental Disorders and Their Friends (Unapei), “thousands of children” were left without a solution on Monday morning. The phenomenon comes as France is celebrating its athletes during the Paralympic Games.

Cahill, who has severe motor and mental disabilities, is one of those kids who “doesn’t fit the frame” and is deprived of community life due to a lack of solutions. A real attack on their implementation and development. But it’s also a huge restriction for their parents, who are forced to care for them 24 hours a day. “We are putting everything in place to keep it evolving. But we are in a situation where there is no progress. He will be 9 in November and I still don’t know what solutions we will have.

Files that cannot be moved forward

The Panetto family lived in Saint-Fons, close to Lyon. Since their eldest son was 3 years old, the couple has been asking the French government to welcome the little boy. But since the latter left the home-based nursery that had given him so much satisfaction, every return to school has become synonymous with headaches. “I have been applying for IME positions for years [institut médico-éducatif]. We were on waiting lists everywhere but things weren’t moving forward. We can’t plan, we can’t move forward. »

Since reaching school age, Cahill has attended school a few times in “normal” settings, but according to his mother, he struggled to adapt. When he was taken into care, he was refused access to the cafeteria. “They called me an hour later to pick him up. There’s always something. I don’t blame the teachers, they were nice to him and did what they could, but they weren’t trained for this. The school should It’s compulsory education for everyone. When I mention this, everyone is blaming each other. The problem is that there is no space.

In France, it is estimated 11,000 children awaiting EMI care. Faced with this apparent lack, schools often serve as “day care centers” for children who have nothing to do.

‘Desperate times’

Business Manager Iteb is lucky to be here every Monday Smile Gatewaya building in Mezieux that welcomes children without solutions. It was a real breath of fresh air for the couple, but most importantly, a wonderful place for Cahill to realize herself. According to the mother, the association, run by volunteers, is threatened with closure, jeopardizing the only hospitality solution that can support her son. “When I picked him up, he seemed to be doing well. He was alive! It’s very important that he can’t be with me all the time. When I don’t have a solution, sometimes I have to bring it to work, I tinker, I’ll make arrangements, but I can see that he needs real support.»

Millions of children returned to school on Monday morning for the start of the new school year. Thousands of families with children with disabilities find themselves without solutions. – Eric Tschaen/SIPA

To those who asked Iteb to give up her company, the mother replied that this was not a solution. Deprived of their income, the family can no longer afford the spiritual exercise classes the young boy needs to grow. The couple have a close relationship and recognize that they often go through difficult times. “We sometimes go through desperate times. » Like them, thousands of parents feel like they’re being slapped in the face every time they go back to school. A mirror is revealed to the reality they’re trying to escape: No, their children are not” Ordinary,” but he’s trying his best every day to thrive in a society that’s supposed to help him. In an ideal world, we would have extraordinary solutions for all these kids. We’re far from it.

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