Amazon-MGM will release “I Am: Celine Dion,” a film about a year in the life of the famous singer, as she faces a disease that affects her spinal cord and brain.
Dion said in a statement: “The past few years have been challenging for me, journeying from knowing my condition to learning to live with and manage it, but never letting it define me.” Before I could return to performing, I realized how much I missed the spotlight and my fans. During my time off, I decided I wanted to document this part of my life to help others suffering from this disease.”
She added that she hopes the film will “raise awareness about this little-known disease”.
Celine Dion works as an “actor” when she can’t sing
A new documentary about Celine Dion is about to be released, with the purpose of sharing and disseminating information about stiff person syndrome, a neurological disorder that the female singer has been diagnosed with. Photo: Bravo TV.
The company’s trailer for the film reads: “This is an emotional, energetic and poetic love letter to music”. Jennifer Salke, head of Amazon MGM Studios, praised it as “a raw, poignant portrait of an incredibly dramatic time”.
Celine Dion shared with fans in December 2022 that she was dealing with stiff person syndrome in an Instagram video. The “My heart will go on” singer said that the contractions caused by this disease affect every aspect of her daily life. That prevented Celine Dion from completing her performances during the month. year-long tour. In May 2023, she canceled all future tours.
In December 2023, her sister shared that Celine Dion currently cannot control her muscles, but is still determined to return to the stage.
Stiff person syndrome, first diagnosed in 1956, is a rare autoimmune neurological disorder that can cause muscle stiffness and painful spasms in the lower back, legs and trunk. It has an infection rate of one to two people in a million.
The new film comes from Oscar-nominated filmmaker Irene Taylor, whose successful documentaries include the Hulu-produced “Leave No Trace: A Hidden History of the Boy Scouts” and most recently, “Leave No Trace: A Hidden History of the Boy Scouts.” Trees and Other Entanglements” by HBO.
has sold more than 250 million albums during her 40-year career and recently appeared in the romantic comedy Love Again.