The same photograph and the same message communicated the personal present that Bruce Willis goes through. In his private universe, the 67-year-old actor is surrounded by women: his wife, Emma Heming, his famous ex-wife Demi Moore, and his five daughters: three from his first marriage, and two from his second. . Except for these last two, who are 10 and 8 years old respectively, the rest of them uploaded the following post to their personal Instagram accounts, illustrated with a photo of a relaxed Willis, smiling at a sunset on a California beach: “Our family wanted begin by expressing our deepest gratitude for all the love, support and wonderful stories we have all received since sharing Bruce’s original diagnosis. In that spirit, we wanted to give you an update on our loving husband, father, and friend as we now have a deeper understanding of what he is experiencing.
Since we announced Bruce’s aphasia diagnosis in spring 2022, his condition has progressed and we now have a more specific diagnosis: frontotemporal dementia (FTD, frontotemporal dementia). Unfortunately, the daily difficulty in communicating is just one symptom of the disease Bruce faces. While this is painful, it is a relief to finally have a clear diagnosis.”
This statement in networks is signed simply as “Willis/Moore Women”, that is: Emma and her daughters Mabel Ray and Evelyn Penn, ages 10 and 8; and Demi Moore and the three daughters she had with the Die Hard actor, Rumer, Scout and Tallulah. To this text, they added an additional section for those who want to know a little more, and it is part of all the information that, in this regard, was published on its official site by the Association for Frontotemporal Dementia, understanding that the fame of Bruce Willis can serve to put the focus on this disease that is sometimes misdiagnosed as Alzheimer’s.
What does Willis have? Ratings for what Bruce Willis suffers from range from cruel to terrible disease. Nothing different from any pathology that undermines the daily well-being of a person who at 67 –as the actor has– is still in an active stage.
According to the North American association that took this situation to teach regarding prototemporal dementia (FTD), this is a disease regarding which little or nothing is known. For people under the age of 60, FTD is the most common form of dementia, “and since it can take years to be diagnosed, it is likely to be much more common than we know.”
The progression of symptoms in behavior, language, and sometimes mobility varies from person to person, but it does lead to a progressive decline from two years to more than twenty years. As the FTD progresses, the affected person may experience increasing difficulty planning or organizing activities; or you may even behave inappropriately in social or work settings, and have trouble communicating or relating to loved ones.
Currently, there is no cure for FTD and there are no treatments available that can slow or stop the progression of the disease. Beyond any medication, there are ways that caregivers with FTD can take to maximize their quality of life. It is estimated that the United States there are regarding sixty thousand cases of FTD. It is also frequently misdiagnosed as Alzheimer’s disease, depression, Parkinson’s, or a psychiatric condition.
Fame that works Apparently due to the joint communiqué of “the women of Bruce Willis” and the informative correlate of the aforementioned association, the idea of making visible what the FDT is is concrete.
It is worth remembering how much the existence of Alzheimer’s helped to spread when one of Rita Hayworth’s daughters made public her mother’s suffering from that disease in 1979. And also how it helped to spread the word regarding “Lewy body dementia” some time following the death of Robin Williams, who had been misdiagnosed with Parkinson’s and later believed he had Alzheimer’s due to the emotional disturbances he was going through. Or also when Angelina Jolie inadvertently didacticism by undergoing a double mastectomy –advised by a medical team– to reduce the possible genetic propensity to develop breast cancer.
These are just a few cases of how a public figure can help spread diseases that at the time were little known or unknown.
family crusade. “As Bruce’s (Willis) condition progresses, we hope that media attention can be focused on shedding light on this disease that needs much more awareness and research,” Emma Willis and Demi Moore wrote in a longer text. “Bruce was always convinced to use his voice in the world to help others and raise awareness regarding important issues both in public and in private. We know in our hearts that if he might today, he himself would want to respond to gain global attention, as well as make a connection with those who are also dealing with this debilitating disease that affects so many people and their families. Ours is just one family with a loved one suffering from FTD.”
The entire Bruce Willis family lined up in this informative crusade and in the first 48 hours of the news being released, the association’s official website had a striking growth in online inquiries.
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