an association of victims files a complaint after cases of brain tumors

an association of victims files a complaint after cases of brain tumors

2024-11-08 10:01:00

Towards a new health scandal? Presented as a miracle pill to treat endometriosis or acne in particular, Androcur has been widely prescribed to many women, without warning them of the risks of brain tumors, although they have been known for years. An association of victims, Ameava, filed a complaint against According to The Worldthis criminal complaint targets five offenses: administration of a harmful substance, involuntary harm to the integrity of the person, endangering others, failure to report an adverse effect, aggravated deception.

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“It is now obvious that the actors in charge of the safety of Androcur – health agency, laboratories, doctors – have failed in the management of the side effects of this drug,” writes the association in a communiquéwhich requests the opening of a judicial investigation “to determine the negligence committed and establish the responsibility of the actors involved”.

Androcur (cyproterone acetate) is a progestin marketed by Bayer since the 1980s. Originally, this medication was indicated to resolve excessive hair problems, but for decades it was prescribed well beyond of these indications, such as contraceptive pills, treatment against acne or against endometriosis. The pill has also been prescribed to people in transition, to block their male hormones. But this drug, presented as miraculous, has significant side effects, and can increase the risk of developing brain tumors by 20 with prolonged use.

“I had lost my speech”

Some 2,578 women were operated on for a meningioma due to taking a progestin-only drug between 2009 and 2018. If these tumors are sometimes described as “benign”, they are not likely to degenerate into fatal cancers but they can cause serious neurological disabilities.

“This meningioma made me hemiplegic on the right side. I had lost my speech,” confides Emmanuelle Huet-Mignaton, victim and co-founder of the Amaeva association. After taking Androcur for seven years, she says she developed five tumors, including one the size of an orange. “It plunged me into quite a depression,” she explains to France Info.

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Emmanuelle is not an isolated case. Dozens of victims say they have experienced the same symptoms. “I could have lost my eye,” laments a fifty-year-old, who had to undergo a series of surgical interventions.

ALSO READ Mediator: Irène Frachon denounces Servier’s “monstrous” behaviorAccording to the complaint, “starting in 1998, cases of meningiomas were regularly reported to laboratories marketing Androcur.” And this excess risk was identified in the early 2000s, before being recognized by the health authorities in 2008-2009, according to Amaeva. The link of the drug Androcur with meningiomas was clearly established in 2018. “However, no information was communicated to prescribing health professionals or patients before 2019,” denounces the association.

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**Interview with ‍Dr. Emily ⁢Harper, Neurosurgeon and⁤ Advocate for Patient Safety**

*Date: November 8,​ 2024*

**Interviewer:** Welcome, Dr. Harper. Thank you ⁣for‌ joining⁢ us today‍ to discuss the recent concerns surrounding Androcur and its potential⁣ risks. Can you ‍summarize the situation for our listeners?

**Dr. Harper:** Thank you for having me. The⁢ situation with Androcur, or cyproterone ⁣acetate, is quite alarming. This medication has been marketed primarily for ⁣conditions like endometriosis and severe acne; however,⁣ it’s now being associated with an increased risk of⁢ meningioma, a type of brain tumor. Evidence suggests that prolonged use, especially at​ high doses, significantly heightens ⁢this risk.

**Interviewer:** What have we learned from the data regarding the link between Androcur and meningiomas?

**Dr. Harper:** A recent⁢ study highlighted‍ that using this drug for ⁤extended‌ periods‌ can increase the likelihood of ‌developing meningiomas by up to 20%. While⁢ these tumors are primarily non-cancerous, they⁢ can ⁣lead ⁣to serious neurological issues. Between 2009 and‌ 2018,⁤ over 2,500⁢ women had surgery to remove meningiomas related⁤ to Androcur use. This indicates a troubling trend that needs urgent⁣ attention.

**Interviewer:** There is an‍ ongoing complaint filed by an association⁢ of‌ victims, Ameava. What are the main allegations?

**Dr. ​Harper:**⁣ Yes, Ameava has filed a criminal complaint‌ citing‌ severe alleged failures by health agencies, pharmaceutical companies, and prescribing doctors. They claim offenses include⁢ administering a harmful substance, ⁢failing to report adverse effects, and ⁣endangering public health. The association is⁤ pushing⁢ for a judicial investigation to hold those responsible accountable.

**Interviewer:** Given your background⁤ in neurosurgery, what message do you have for doctors​ who prescribe Androcur ⁢or similar medications?

**Dr. Harper:** It’s crucial for healthcare providers to fully disclose potential ⁢risks associated with any medication. In the case of Androcur, understanding the ‍long-term​ impacts and ensuring informed consent is essential. Patients should ‌be made aware ⁢of all possible side effects and alternative treatments to make educated decisions regarding ‌their health.

**Interviewer:** What steps can​ be taken moving forward‍ to prevent similar situations in the future?

**Dr. Harper:** We need ⁢stricter regulations on drug approval and ‍monitoring, as ‍well as better education⁢ for ⁣both healthcare providers and patients ⁣on the ‌implications of long-term drug use. Continued⁤ research into ​side effects and active communication of any new findings are vital. Additionally, it’s important for organizations like⁢ Ameava to advocate for better safety measures and inform the public about drug risks.

**Interviewer:** Thank you, Dr. Harper, for shedding light on this important‌ issue. It’s vital that we‍ keep the conversation going about drug safety⁢ and ⁤patient well-being.

**Dr. Harper:**⁣ Thank​ you for having me. Raising ⁣awareness is the first​ step towards ensuring safer treatment practices for⁣ everyone.

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