a podcast on the experiences of families of children with disabilities • Néo UQTR

2023-11-06 20:08:23

Inasmuch as doctoral student in biomedical sciences at the University of Quebec at Trois-Rivières (UQTR), Sandrine Gagné-Trudel is interested in the experiences of families of children living with disabilities. With the aim of making knowledge about disability more accessible and raising public awareness of this reality, she brought together parents and researchers to discuss subjects that affect them through her very first popular science podcast, entitled “Espace Adapté “. This was born following its participation in the 2022-2023 edition of the Vulgarisathon of Acfas, which was held at UQTR.

Each episode of the podcast highlights the experiential knowledge of a parent as well as the scientific knowledge of a researcher. “It was important to me that this popularization project was developed in collaboration with parents, and not only with members of the scientific community. By creating a dialogue between parents and scientists, we have access to rich, contextualized and even more meaningful conversations,” explains Sandrine Gagné-Trudel, also a graduate at the master’s degree in occupational therapy of UQTR.

The “Adapted Space” podcast consists of three episodes. In the first episode on parental stress, it is possible to hear the testimony of Marie-Pier Bergeron, mother of a daughter living with cerebral palsy, and the sharing of the scientific results of the work of Delphine Périard-Larivée, candidate for the doctorate in psychology at UQTR, which works on disability and parenting.

The second episode focuses on adaptation to a new reality and resilience. Karine Gendron, mother of twins with complex health conditions, first shares her inspiring story about her adaptation process. Anouchka Hamelin, holder of a doctorate in psychology at UQTR, enriches the discussion with captivating reflections on resilience, drawing on his thesis.

Finally, the third episode addresses collaboration between parents and health service providers. Guglielmo Perpetuini and Audray Quesnel Traverse, two parents of a very premature baby, share their experience of collaboration during their son’s hospitalization. Angela Fragasso, holder of a master’s degree in health services administration at the University of Montreal and specialist in the family-partner approach, also brings her expertise to the conversation.

The “Adapted Space” podcast is available on YouTube, Spotify et Apple Podcast.

Good listening !

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#podcast #experiences #families #children #disabilities #Néo #UQTR

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