Overcoming Communication Barriers in Cancer Treatment: A Story of Innovation and Resilience
A Misdiagnosis Leads to a Difficult Journey
In 2021, a 38-year-old freelance artist named Josh noticed blood after using the bathroom. Assuming it was just a hemorrhoid, he didn’t immediately seek further medical attention. After noticing the bleeding continued he consulted with multiple specialists.
“I felt something was still not right (after noticing the blood), it prompted me to see a doctor,” Josh told doctors. “At first, no one really knew what was going on.”
Diagnosis eventually revealed a devastating truth: stage 4 colon cancer that had metastasized to his liver. “It was a huge shock,” Josh said.
Navigating Treatment with Unique Communication Needs
The road ahead was challenging, but Josh was determined to navigate it head-on. Since he is deaf, his network of doctors needed to find creative ways to ensure clear communication throughout his treatment. Chemotherapy, liver surgery, and sophisticated radiation therapy were all crucial components of his fight.
As his medical team explained treatment options, they understood a major challenge awaited them: how could they ensure he fully understood each step?
His doctor, a specialist familiar with complex surgical interventions like a hepatic arterial infusion pump, knew a unique approach was needed. This pump delivers chemotherapy directly to the liver, allowing for more targeted treatment.
Though the technology existed, the process of explaining it and tracking his progress required careful consideration of Josh’s needs.
“It took a lot of effort,” he revealed.
## Innovation and Hope
Doctors developed customized glasses for Josh. These revolutionary spectacles allowed him to see a translator fittingly positioned in another room during his targeted radiation sessions. This ensured he could understand everything happening to him, allowing for better control and peace of mind.
“It felt empowering,” Josh explained.
Dr. Goodman acknowledged the sense of urgency: “Knowing that the tumor on the liver had spread, we knew that its movement in conjunction with the diaphragm required careful attention.”
Dr. Goodman and her team used “respiratory gating”. Although Josh didn’t know it at the time, it amounted to a breathing synchronization for greater precision.
He was no longer a passive recipient of care but an active participant in his own healing process. Now, he’s an advocate for accessibility in healthcare, emphasizing the importance of communication and technology’s potential
“I want to be a positive role model for the deaf and other people with disabilities. I know that in the deaf community you will usually see people who may not know about communication access…a lot of people are afraid or give up, or don’t know about the alternatives that exist,” Josh said, emphasizing the importance of language access and inclusivity
The journey hasn’t been easy, but Josh’s determination and spirit are a source of inspiration. His story showcases the power of innovation, personalized care, and perpetual hope.
Josh’s experience reminds us that overcoming challenges can be aided by using technology to ensure everyone can access the care they deserve.
What specific strategies did Dr. [Doctor’s Last Name] and their team use to ensure Josh understood his treatment options and the potential risks and benefits of each step?
## Overcoming Communication Barriers: An Interview with Dr. [Doctor’s Last Name]
**Host:** Welcome back to the show. Today, we’re discussing a truly inspiring story about resilience in the face of adversity. Josh, a talented artist, battled stage 4 colon cancer while facing unique communication challenges. Joining us is Dr. [Doctor’s Last Name], the specialist who helped Josh navigate this difficult journey. Welcome to the show, Dr. [Doctor’s Last Name].
**Dr. [Doctor’s Last Name]:** Thank you for having me. It was a privilege to work with Josh.
**Host:** Dr. [Doctor’s Last Name], can you tell us about the unique challenges you faced when treating Josh, considering his deafness?
**Dr. [Doctor’s Last Name]:** Absolutely. Josh’s case highlighted the importance of clear, accessible communication in healthcare. We needed to ensure he fully understood his diagnosis, treatment options, and the potential risks and benefits of each step.
**Host:** How did your team adapt to ensure effective communication with Josh?
**Dr. [Doctor’s Last Name]:** It was a truly collaborative effort. We utilized sign language interpreters, written materials, and visual aids to ensure Josh had all the information he needed. We also took extra time to ensure he had the opportunity to ask questions and express his concerns. It’s vital that patients feel empowered to participate in their own care. [[1](https://ascopubs.org/doi/10.1200/JCO.2017.75.2311)]emphasizes the importance of adapting communication strategies when faced with communication barriers.
**Host:** Josh underwent complex treatments like chemotherapy, liver surgery, and radiation. How did you tailor these procedures to his specific needs?
**Dr. [Doctor’s Last Name]:** We carefully explained each procedure in detail, using visuals and clear, concise language. We made sure he understood the goals of each treatment and what to expect throughout the process. Additionally, we were mindful of potential side effects and made plans to mitigate any communication challenges they might pose.
**Host:** This case exemplifies the triumph of the human spirit and the importance of innovative approaches in healthcare. Dr. [Doctor’s Last Name], thank you for sharing your valuable insights and for your dedicated work with Josh.
**Dr. [Doctor’s Last Name]:** Thank you. It was truly an honor to be a part of Josh’s journey.
**Host:** To our viewers, remember that effective communication is crucial for every patient. Don’t hesitate to advocate for yourself and ensure your healthcare providers understand your needs.
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