<a href="https://www.archyde.com/sammy-basso-oldest-known-progeria-sufferer-dies-at-28/” title=”Sammy Basso: Oldest known progeria sufferer dies at 28″>Sammy Basso, who was the longest-living patient of the rare genetic disorder progeria (it can affect one in eight million newborns), died on Saturday at the age of 28, the Italian Progeria Association announced in Reuters according to
Progeria, also known as Hutchinson–Gilford syndrome (HGPS), causes people to age rapidly, resulting in reduced quality of life and a life expectancy of only 13.5 years without treatment.
Sammy Basso was born in 1995 in Schio, in the Veneto region of northern Italy. He was diagnosed with progeria when he was two years old. In 2005, he founded the Italian Progeria Association with his parents.
Sammy a National Geographic Sammy’s Journey became famous through his documentary film, which tells the story of his journey along Route 66 in the United States from Chicago to Los Angeles with his parents and one of his best friends, Riccardo. “Today our light, our leader has gone out. We thank Sammy for letting us be a part of this wonderful life,” he wrote on the association’s Instagram page.
There are only 130 recognized cases of progeria worldwide, four of which are in Italy. However, the Italian Progeria Association estimates that there may be as many as 350 cases, as they are difficult to track, especially in developing countries.
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A Shining Example of Resilience: Remembering Sammy Basso
As I sit down to write about the passing of Sammy Basso, I am filled with a mix of emotions – sadness, yet admiration and inspiration. The world has lost a remarkable individual, who defied the odds of a rare and debilitating disease to live a life that was truly extraordinary. Sammy Basso, the longest-living patient with progeria, has left an indelible mark on our world, and his legacy will continue to inspire and motivate us for years to come.
According to recent reports, Sammy Basso passed away at the age of 28, leaving behind a trail of tributes and condolences from around the world [[1]] [[2]] [[3]]. Born with progeria, a rare genetic disorder that accelerates the aging process, Sammy’s life was far from ordinary. Yet, despite the numerous challenges he faced, he lived with a conviction that he could connect with anyone, and his life’s work was a testament to this conviction.
As I reflect on Sammy’s remarkable life, I am struck by his resilience and determination. Despite the physical limitations imposed by his condition, he chose to live a life of purpose and meaning. His advocacy work for progeria awareness and research was tireless, and his passion inspired countless individuals around the world.
The impact of Sammy’s life extends far beyond his advocacy work, however. His very existence challenged our conventional understanding of aging and disease. As the longest-living patient with progeria, his life was a beacon of hope for families affected by this rare condition. Moreover, his courage and determination in the face of adversity serve as a powerful reminder that life is precious, and every moment is worth cherishing.
As the world mourns the loss of Sammy Basso, we take comfort in the knowledge that his legacy will live on. His funeral, which will be held in Tezze sul Brenta, will be a celebration of his life and a testament to the impact he had on our world [[2]].
Sammy Basso’s passing is a poignant reminder of the fragility of life, yet it is also a powerful tribute to the human spirit. His life was a shining example of resilience, courage, and determination, and his legacy will continue to inspire and motivate us for years to come. As we remember Sammy Basso, we honor his memory by continuing to advocate for progeria research and awareness, and by living our lives with the same conviction and purpose that he embodied.
Rest in peace, Sammy Basso. Your life will never be forgotten.
References:
[[1]]https://www.statnews.com/2024/10/06/sammy-basso-obituary-progeria-activism/
[[2]]https://www.ilmessaggero.it/en/funeralarrangementsforsammybassotheworldslongestlivingprogeria_patient-8400370.html
[[3]]https://turkmenportal.com/en/blog/83352/sammy-basso-longestliving-progeria-patient-dies
