Since Tuesday, June 25, 2024, a brand new documentary entitled I’m: Celine is offered on Prime Video. This movie reveals the day by day lifetime of Céline Dion, marked by ache and paralyzing seizures attributable to stiff particular person syndrome. This uncommon autoimmune illness, revealed by the singer in December 2022, manifests itself by involuntary muscle stiffness and spasms triggered by emotional stimulation. A very shifting scene within the documentary reveals Celine Dion in the midst of a seizure, in tears and immobile.
Christian Jorgensen launched an enchantment on France Bleu Hérault on Wednesday, June 26, 2024, asking Céline Dion to fund analysis into the uncommon illness she suffers from, stiff particular person syndrome. “If somebody at this time comes up with 10 million euros and says ‘make me a biomedicine’, I am going to do it,” he mentioned. He additionally identified that the IHU was already concerned within the struggle towards autoimmune illnesses resembling lupus, polyarthritis and scleroderma.
“For her, 10 million euros will not be a lot and it’s not a joke”
Jorgensen mentioned the IHU is ready to goal and remove the immune cells liable for the signs, however it lacks the funding to deal with the uncommon illness, which impacts solely regarding 50 folks in France. “It is a market that nobody is taken with,” he mentioned. He hopes the enchantment will catch the star’s consideration. “I feel that for her, 10 million euros will not be a lot, and it is not a joke,” he mentioned. Regardless of an try to contact Celine Dion’s crew final 12 months, no concrete follow-up has been made. Christian Jorgensen hopes that the media protection will assist get the message on to the 56-year-old singer.
In April 2024, Celine Dion confided in Vogue : “I didn’t struggle the illness, it’s nonetheless in me and perpetually. We are going to discover, I hope, a miracle, a method to remedy it because of scientific analysis, however I have to be taught to dwell with it .” In one other interview given to Anne-Claire Coudray on TF1 on June 16, 2024, she mentioned she was taking more and more highly effective drugs: “Originally, it helped me a little bit, however in a short time, I needed to enhance the doses. I used to be scared as a result of it wasn’t working anymore.”
