2024-04-12 16:55:00
Working with the France Parkinson committee in Eure-et-Loir, Sylvie Labelle and Jean-Noël Daguy, who live in Perche, were diagnosed with Parkinson’s disease ten years ago. Since then, they have been coping with the disabilities caused by this long-term illness.
“For us, the advantage is that we know how we are going to end,” says Jean-Noël Daguy, 63, all smiles, well aware of the complications to come. He knows that he has a progressive illness: the symptoms become more and more severe as the years go by.
Parkinson’s cafés organized once a month in Nogent-le-Rotrou
“The earth collapsed for me”
If today he takes things with a certain lightness, this was not always the case. His diagnosis, made in 2014, plunged this basketball fan into a form of despair: “The earth collapsed for me,” he explains, “I cried, and I asked myself how I I was going to tell my family.”
“You can live with Parkinson’s disease, as long as you are responsive.”
Jean-Noël Daguy (empty)
Jean-Noël Daguy ended up accepting his illness. Determined not to get caught up, he strives to remain mobile, while “taking care of my family too.”
Sylvie Labelle, 58, knew this disease personally before being diagnosed in 2014. For years, she accompanied her mother, who suffered from it, to her appointments with the neurologist.
“I found myself a little lost”
“One day, I ended up worrying regarding my tremors to her. She ordered a scan, which revealed the disease,” she explains.
“I found myself a little lost, despite the experience I had with Parkinson’s, through my role as caregiver to my mother. I then understood that I had to adapt my life to this new companion.”
Sylvie Labelle
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The memory of her mother’s complicated end of life is a source of anxiety for Sylvie Labelle. She confides that she fears dependence: “I can’t imagine myself being bedridden all the time.” It’s difficult to imagine this hypothesis as she practices swimming and skiing with remarkable determination.
Living day by day (empty)
For Jean-Noël Daguy as for Sylvie Labelle, the future is no longer a major concern. Both have learned to live day by day, enjoying the little pleasures that life offers, despite increasingly debilitating symptoms.
In a way, every day is an opportunity for them to win and everyday life takes on a new flavor. “I no longer put priorities in the same places,” confides Sylvie Labelle.
“Parkinson’s disease has redeployed our lives differently, with more optimism,” they agree to say, in unison.
Yamine Nfifakh
1712943697
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