Pangolin Man: The Story of Zhang Simei’s Battle with Congenital Ichthyosis

2023-12-01 05:22:43

Suffering from congenital ichthyosis, known as “pangolin“human”MalaysiaChinese Zhang Simei recently passed away due to deterioration of her condition at the age of 76.

Zhang Simei has lamellar congenital ichthyosispatientsuffered from congenital ichthyosis. He had no blinders since he was a child and his eyes were always open. At the same time, he had to endure the pain of the skin constantly falling off layer by layer due to cracks all over his body. He went to Taiwan for treatment many times.

According to reports from Malaysian media such as Guangming Daily, Zhang Simei passed away on the followingnoon of November 30 at the Tampin Disa Bomai Garden Compassion Home for the Elderly.

The report quoted Xu Jinshui, founder of the Tampin Magic Lamp Clan Welfare Association, as saying that Zhang Simei had been in and out of Malacca and Tampin hospitals many times a year ago. She was unable to walk due to internal organ failure and physical weakness.

The report pointed out that Zhang Simei’s condition deteriorated a month ago and unexpectedly passed away on November 30.

Before treatment, Zhang Simei had a strange appearance. Before the age of 35, she hid in a small hut at home and lived in isolation from the outside world. Until the writer Bo Yang discovered her in Malaysia and disclosed the matter to the media. With the help of kind-hearted people, she arrived in Taiwan. After receiving free treatment from Chang Gung Memorial Hospital, he finally gained a new lease of life.

Zhang Simei came to Taiwan for follow-up treatment for the second time in 1996. Wang Yongqing, chairman of the Formosa Plastics Group, also met Zhang Simei. Zhang Simei hugged him happily and thanked him repeatedly.

Bo Yang wrote an article “Pangolin Man” in 1982 to introduce Zhang Simei’s situation, describing her as the reincarnation of a pangolin. She has no eyelids and cannot sleep with her eyes closed. Her skin has no pores, and her whole body is thick and flaky with cracks like fish scales. Her skin is so dry that she has to be soaked in water. inside. Malaysian ichthyosis patient Zhang Simei (middle) received an artificial hip replacement with the assistance of Dr. Guan Yuzhong (left), a dermatologist at Chang Gung Memorial Hospital in 2014. Before being discharged from the hospital, he hugged Xie Bangxin (right), director of the Joint Reconstruction Department of the Orthopedics Department of Chang Gung Memorial Hospital, to express his gratitude. The United Daily News reported that Zhang Simei, a “pangolin man” from Malaysia, came to Taiwan many times for treatment.United Daily News file photo

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