If monkeypox mainly echoes skin lesions and bouts of fever, those affected also suffer from the psychological repercussions linked to the disease, warn former patients and caregivers.
“We do not come out unscathed from a disease that has hurt us a lot, locked up for three weeks with, in addition, the weight of discrimination“, says Corentin Hennebert, 27, who publicly spoke following being “one of the first cases” French. Since his remission, he has been approached by other patients who, like him, report the “psychological cost“of illness.
“There is psychological distress that is linked to several things“, explains Nathan Peiffer-Smadja, infectious disease specialist at Bichat Hospital (Paris), who coordinated a clinical study on infected patients.
Firstly, “pain“and any”sequelae, in particular aesthetic“, on the other hand, the fact of being reached by “a disease that people have never heard of“and which comes following two years of the Covid-19 epidemic, leading to a new three-week isolation.
A small part of the patients develop internal lesions, in particular proctological, “extremely painful“and which sometimes require hospitalization or even surgery,” he explains.
“Razor blades“
This was the case for Corentin Hennebert: “I constantly felt like razor blades were being pushed into me, I can’t find any other comparison, it was so strong“, he says.
Before being placed on tramadol, a powerful painkiller, he had “lost 7 kg over three days“because he was no longer eating.”I only thought of the pain“, he recalls. “And I’m not the only one, others contacted me to tell me that they were at the end of their tether, that they were crying all the time“.
Spared by these sufferings, Sébastien Tuller, 32, says he was affected by the appearance of the lesions. “It was really ugly and I didn’t know what to do. I was very worried to see it appear on my face.“.
“As soon as a disease is visible, it is scary because it becomes potentially stigmatizing“, observes Michel Ohayon, director of 190, a sexual health center, drawing a parallel with “Karposi’s sarcoma” was “the symptom of AIDS“.
A comparison often taken up by those concerned. For if the two diseases”have nothing to do“in terms of severity, monkeypox”comes to awaken from the traumas of HIV“, estimates Nicolas Derche, national director of the community health center of the SOS group, which brings together 650 social and medico-social structures.
The rekindled trauma of HIV
“In HIV-positive people, this has reactivated very violent things“, whether the “fear of diagnosis” or of “relive strong stigma“, reports Vincent Leclercq, activist at Aides.
As was the case with HIV, monkeypox currently circulates mainly within the MSM (men who have sex with men) community, which has led to renewed discrimination.
“There is a lot of ordinary homophobia and it has a real impact on mental health“, testifies Sébastien Tuller, LGBT activist and lawyer, who says he received torrents of insults and derogatory remarks.
“Many don’t say they have monkeypox or have had it, for fear of being stigmatized“, he reports. “Young people especially, who have not yet come out” with their family, or people who are afraid of having their sexual orientation revealed to their employer because of the duration of the isolation (three weeks).
In August, Santé Publique France came under “psychological and relational difficulties“reported via the line”Monkeypox info service“. The association that manages this listening service told AFP that 22% of calls relate to these themes.
Among the other repercussions observed, the effects on mental health “precariousness“generated for some, such as self-employed or sex workers, by the three weeks of isolation, and the”degradation of sex life“, says Nicolas Derche.
For fear of being contaminated or contaminating, many people have ceased all sexual activity for months, or are experiencing libido problems, explain the associations.
Fortunately, Mr. Derche points out, “HIV experience“made it possible to develop”the community health approach” et “the care of exposed persons“and so”support people who are now facing monkeypox“.