Citizen Walid Al-Tamimi revealed that he suffers from a rare disease called “fatal familial insomnia” syndrome, and it is the first person to suffer from it in the Middle East, and 40 families suffer from it in the world.
Speaking to Al-Tamimi, Al-Tamimi said:News 24He is 21 years old and is the first non-hereditary patient with this disease, since no one in his family has this disease.
He explained that 5 years ago, a doctor mentioned to him the possibility of suffering from “fatal familial insomnia”, and in the middle of 2020, he had some symptoms of infection, between nausea and the loss of some details, and a few days ago it was confirmed that he had the disease.
He pointed out that no one in his family is infected or carrying this gene, despite it being considered a genetic genetic disease transmitted from the father or mother to one of the sons, and that he discovered his infection following suffering from the pooling of prion under the brain, indicating that the more its gathering moved to another stage of the disease. .
He stated that the fatal insomnia syndrome lasts from 7 to 42 months, and consists of 4 stages, in which the patient suffers from the inability to sleep partially for 5 months, in addition to hallucinations, fear and panic, and lasts for two years and four months, then the inability to sleep completely for a period 6 months, and finally memory loss and stopping of some parts of the brain for 5 months, then death.
He stressed that there is no cure for fatal familial insomnia, and everyone who is found to be infected completes the 4 stages and then dies, pointing out that he will complete the progression of the disease stages in a Zurich hospital.
